Are you a Patient Advocate Leader or Social Media Advocate passionate about growth and spreading awareness for the conditions that affect your life?

Let's collaborate!

Be the change with Marie!

Let's get connected!



membership is free!


Plan collaborations, events, challenges, videos, and viral campaigns with me! Build your personal advocacy resume by being a R.A.R.E. Affiliate.


*No contract or fee involved*


For awareness groups, research foundations, businesses, blogs, and organizations that can help The community

  • Be added to our Official R.A.R.E. Partners Page

  • Eligible for product reviews by Marie D.L.

  • Be included on projects that are related

  • Have the first chance to collaborate or sponsor projects


*No contract or fee involved*

To reach out and start


Get involved by joining


The R.A.R.E. Community is a social media networking site designed for patient advocates, caregivers, and any soul touched by a chronic, mental, invisible, or rare disease. It is not connected to any other social media site and is designed to be a stress free sanctuary for us to share our stories. As such, we have chosen to not touch on any divisive or political topics unrelated to accessibility. Please respect this personal boundary, and if your advocacy is related to political topics, please refrain from sharing it within The R.A.R.E. Community to keep this a stress free environment.

Thank you for understanding.


© The Dagenais-Lewis Family