r.a.r.e.advoc8Jun 6, 20201 minStarting to Recover....what a week. We physically buried our papa, and symbolically buried a lot more. I had a psych evaluation yesterday, and I realized I...
r.a.r.e.advoc8Jun 2, 20204 minTaking a Step Back๐ ๐๐ฎ๐ป๐ ๐๐ผ ๐ด๐ฒ๐ ๐ฝ๐ฒ๐ฟ๐๐ผ๐ป๐ฎ๐น ๐ณ๐ผ๐ฟ ๐ฎ ๐บ๐ผ๐บ๐ฒ๐ป๐ โข over the last 8 years as a journalist, I have covered very traumatic ev...
r.a.r.e.advoc8May 1, 20204 minThe Rare Benefits of Social Media Social media has benefited the rare disease community by giving them a way to connect, educate, and advocate on behalf of their rare disease