r.a.r.e.advoc8Jun 61 minStarting to Recover....what a week. We physically buried our papa, and symbolically buried a lot more. I had a psych evaluation yesterday, and I realized I...
r.a.r.e.advoc8Jun 24 minTaking a Step Back𝗜 𝘄𝗮𝗻𝘁 𝘁𝗼 𝗴𝗲𝘁 𝗽𝗲𝗿𝘀𝗼𝗻𝗮𝗹 𝗳𝗼𝗿 𝗮 𝗺𝗼𝗺𝗲𝗻𝘁 • over the last 8 years as a journalist, I have covered very traumatic ev...
r.a.r.e.advoc8May 14 minThe Rare Benefits of Social Media Social media has benefited the rare disease community by giving them a way to connect, educate, and advocate on behalf of their rare disease
