we designed our




to be 

a reliable source of 

unconditional support

for all souls who are impacted by a chronic, mental, invisible, or rare condition.

  • Connect with warriors from around the world who understand like no one can

  • Customize your member profile and picture

  • Have access to The R.A.R.E. Community Forum and be able to post, comment, and like

  • Be able to message other members directly at any time

  • Follow other members and earn badges

  • Share your story and spread awareness about your conditions

  • Expand your horizons and learn about other conditions

  • Participate in different challenges and events

  • Have first hand access to the R.A.R.E. Happenings before they are announced

Become a member!

You do not need to be a member of any other social media network to join The R.A.R.E. Community--all you need is an email address.

to request support!

Are you having a tough time?


Tell us what is going on!

We will connect you to a R.A.R.E. Advocate

who may have similar conditions or

experiences. Our R.A.R.E. Advocate will

help be a shoulder to cry on, a listening ear, and help connect you to resources

that may help.

Do you want to join a supportive advocacy team that promotes your work, books collaborations, and offers paid opportunities?


To learn how you can

get involved!




Supporting disabled 



R.A.R.E. Community Forum


© The Dagenais-Lewis Family